{"id":176,"date":"2020-05-07T14:51:26","date_gmt":"2020-05-07T14:51:26","guid":{"rendered":"https:\/\/lemanidifilippo.org\/?page_id=176"},"modified":"2022-07-13T12:46:59","modified_gmt":"2022-07-13T12:46:59","slug":"cose-lmcto","status":"publish","type":"page","link":"https:\/\/lemanidifilippo.org\/mcto\/cose-lmcto\/","title":{"rendered":"Cos&#8217;\u00e8 l&#8217;MCTO?"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; fullwidth=&#8221;on&#8221; admin_label=&#8221;Header Section&#8221; _builder_version=&#8221;4.4.5&#8243; background_color=&#8221;#000000&#8243; bottom_divider_style=&#8221;ramp&#8221; bottom_divider_color=&#8221;#ffffff&#8221; bottom_divider_flip=&#8221;horizontal&#8221; locked=&#8221;off&#8221;][et_pb_fullwidth_header title=&#8221;ECCO DI COSA SI TRATTA&#8221; subhead=&#8221;Cos&#8217;\u00e8 l&#8217;MCTO?&#8221; text_orientation=&#8221;center&#8221; background_overlay_color=&#8221;rgba(51,51,51,0.6)&#8221; content_max_width=&#8221;640px&#8221; _builder_version=&#8221;4.4.5&#8243; title_font=&#8221;Oswald|||on|||||&#8221; title_font_size=&#8221;20px&#8221; title_letter_spacing=&#8221;3px&#8221; title_line_height=&#8221;1.5em&#8221; content_font=&#8221;Lora||||||||&#8221; content_font_size=&#8221;22px&#8221; content_line_height=&#8221;2em&#8221; subhead_font=&#8221;SVN Marujo|700|||||||&#8221; subhead_font_size=&#8221;60px&#8221; subhead_line_height=&#8221;1.5em&#8221; background_color=&#8221;#333333&#8243; background_image=&#8221;https:\/\/lemanidifilippo.org\/mcto\/wp-content\/uploads\/2020\/05\/MCTO-questo-sono-io-scaled.jpg&#8221; parallax=&#8221;on&#8221; parallax_method=&#8221;on&#8221; custom_button_one=&#8221;on&#8221; button_one_text_size=&#8221;16px&#8221; button_one_text_color=&#8221;#ffffff&#8221; button_one_bg_color=&#8221;#d29f68&#8243; button_one_border_width=&#8221;15px&#8221; button_one_border_color=&#8221;rgba(210,159,104,0)&#8221; button_one_border_radius=&#8221;100px&#8221; 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button_one_bg_color_hover=&#8221;#cc8d66&#8243; button_two_bg_color_hover=&#8221;#d29f68&#8243; button_one_text_size__hover_enabled=&#8221;off&#8221; button_two_text_size__hover_enabled=&#8221;off&#8221; button_one_text_color__hover_enabled=&#8221;off&#8221; button_two_text_color__hover_enabled=&#8221;off&#8221; button_one_border_width__hover_enabled=&#8221;off&#8221; button_two_border_width__hover_enabled=&#8221;off&#8221; button_one_border_color__hover_enabled=&#8221;off&#8221; button_two_border_color__hover_enabled=&#8221;off&#8221; button_one_border_radius__hover_enabled=&#8221;on&#8221; button_one_border_radius__hover=&#8221;100px&#8221; button_two_border_radius__hover_enabled=&#8221;off&#8221; button_one_letter_spacing__hover_enabled=&#8221;off&#8221; button_two_letter_spacing__hover_enabled=&#8221;off&#8221; button_one_bg_color__hover_enabled=&#8221;on&#8221; button_one_bg_color__hover=&#8221;#cc8d66&#8243; button_two_bg_color__hover_enabled=&#8221;on&#8221; button_two_bg_color__hover=&#8221;#d29f68&#8243;][\/et_pb_fullwidth_header][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;Services Section&#8221; _builder_version=&#8221;4.4.5&#8243; background_color=&#8221;#ffffff&#8221; custom_padding=&#8221;80px|0px|80px|0px|true|false&#8221; locked=&#8221;off&#8221;][et_pb_row admin_label=&#8221;About Row&#8221; _builder_version=&#8221;3.25&#8243; locked=&#8221;off&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;3.25&#8243; custom_padding=&#8221;|||&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text _builder_version=&#8221;4.4.5&#8243; text_font=&#8221;Lora||||||||&#8221; text_font_size=&#8221;18px&#8221; text_line_height=&#8221;2em&#8221; link_font=&#8221;||||||||&#8221; ul_font=&#8221;||||||||&#8221; ol_font=&#8221;||||||||&#8221; quote_font=&#8221;||||||||&#8221; header_font=&#8221;||||||||&#8221; header_2_text_color=&#8221;#f99d0b&#8221; header_2_font_size=&#8221;50px&#8221; header_2_line_height=&#8221;1.5em&#8221; header_3_font=&#8221;SVN Marujo|700|||||||&#8221; header_3_font_size=&#8221;42px&#8221; header_3_line_height=&#8221;1.5em&#8221; header_5_font=&#8221;Oswald|||on|||||&#8221; header_5_text_color=&#8221;rgba(0,0,0,0.4)&#8221; header_5_font_size=&#8221;20px&#8221; header_5_letter_spacing=&#8221;3px&#8221; text_orientation=&#8221;center&#8221; max_width_tablet=&#8221;&#8221; max_width_phone=&#8221;&#8221; max_width_last_edited=&#8221;on|desktop&#8221; custom_margin_tablet=&#8221;|70px||70px&#8221; custom_margin_phone=&#8221;|50px||50px&#8221; custom_margin_last_edited=&#8221;off|desktop&#8221; custom_padding=&#8221;2px|||||&#8221; text_line_height_last_edited=&#8221;off|desktop&#8221;]<\/p>\n<h5>Osteolisi Multicentrica Carpo Tarsale<\/h5>\n<h2>L&#8217;MCTO \u00e8 una malattia rara<\/h2>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.4.5&#8243;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.4.5&#8243;][et_pb_text _builder_version=&#8221;4.4.5&#8243; text_font_size=&#8221;18px&#8221; text_line_height=&#8221;2em&#8221; link_font=&#8221;||||||||&#8221; ul_font=&#8221;||||||||&#8221; ol_font=&#8221;||||||||&#8221; quote_font=&#8221;||||||||&#8221; header_font=&#8221;||||||||&#8221; header_2_text_color=&#8221;#f99d0b&#8221; header_2_font_size=&#8221;50px&#8221; header_2_line_height=&#8221;1.5em&#8221; header_5_font=&#8221;Oswald|||on|||||&#8221; header_5_font_size=&#8221;20px&#8221; header_5_letter_spacing=&#8221;3px&#8221; header_5_line_height=&#8221;1.7em&#8221; text_orientation=&#8221;justified&#8221; module_alignment=&#8221;center&#8221; custom_padding=&#8221;0px||1px|||&#8221; text_line_height_last_edited=&#8221;off|desktop&#8221; header_2_font_size_tablet=&#8221;&#8221; header_2_font_size_phone=&#8221;36px&#8221; header_2_font_size_last_edited=&#8221;on|desktop&#8221;]<span style=\"font-size: 18px;\">In attesa di una definizione medica pi\u00f9 precisa da parte\u00a0<\/span><span style=\"font-size: 18px; background-color: #ffffff;\">dei Dottori che ci seguono<\/span><span style=\"font-size: 18px;\">, proviamo noi a dire due cose relative alla nostra esperienza. <\/span><\/p>\n<p><span style=\"font-size: 18px;\">Teniamo a precisare che nel mondo delle malattie rare ogni esperienza non \u00e8 la verit\u00e0 assoluta e quindi non \u00e8 detto che a tutti insorgano medesimi sintomi e alla stessa maniera.<\/span><\/p>\n<p><b style=\"font-size: 18px;\">La sindrome carpotarsal osteolisi multicentrica<\/b><span style=\"font-size: 18px;\">\u00a0&#8211; MCTO &#8211; \u00e8 una rara condizione autosomica dominante.\u00a0<\/span><u><\/u><\/p>\n<p>Questa condizione \u00e8 nota anche come Idiopatica Osteolisi Multicentrica con Nefropatia.<\/p>\n<p>E&#8217; caratterizzata dalla distruzione carpale-tarsale e possibile insufficienza renale.<br \/>\n[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.4.5&#8243;][et_pb_text _builder_version=&#8221;4.4.5&#8243; text_font_size=&#8221;18px&#8221; text_line_height=&#8221;2em&#8221; link_font=&#8221;||||||||&#8221; ul_font=&#8221;||||||||&#8221; ol_font=&#8221;||||||||&#8221; quote_font=&#8221;||||||||&#8221; header_font=&#8221;||||||||&#8221; header_2_text_color=&#8221;#f99d0b&#8221; header_2_font_size=&#8221;50px&#8221; header_2_line_height=&#8221;1.5em&#8221; header_5_font=&#8221;Oswald|||on|||||&#8221; header_5_font_size=&#8221;20px&#8221; header_5_letter_spacing=&#8221;3px&#8221; header_5_line_height=&#8221;1.7em&#8221; text_orientation=&#8221;justified&#8221; module_alignment=&#8221;center&#8221; custom_padding=&#8221;0px||1px|||&#8221; text_line_height_last_edited=&#8221;off|desktop&#8221; header_2_font_size_tablet=&#8221;&#8221; header_2_font_size_phone=&#8221;36px&#8221; header_2_font_size_last_edited=&#8221;on|desktop&#8221;]<\/p>\n<p style=\"font-size: 18px; background-color: #ffffff;\"><span style=\"font-size: 18px;\">In parole povere, come spiega Filippo quando qualche altro bimbo fa domande in merito a come mai cammina cosi e ha quelle manine, lui risponde dicendo che semplicemente non ha pi\u00f9 qualche ossa della mano e nel piede qualche osso sta sparendo.<\/span><\/p>\n<p style=\"font-size: 18px; background-color: #ffffff;\"><span style=\"font-size: 18px;\">La parte renale, che dalle letture \u00e8 la pi\u00f9 preoccupante, molto fortunatamente sembra che, curata in maniera preventiva assumendo una pastiglia tutti i giorni, sia tenuta sotto controllo.<\/span><\/p>\n<p style=\"font-size: 18px; background-color: #ffffff;\"><span style=\"font-size: 18px;\">Quindi ci\u00f2 che resta sono le sue mani delicate, ulnarizzate, con poca forza, con alcune dita bloccate \u2026i piedi piccoli con rarefazione ossea, ginocchia e gomiti con dei blocchi articolari.\u00a0<\/span><\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section 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custom_padding=&#8221;|||&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text _builder_version=&#8221;4.4.5&#8243; text_font_size=&#8221;18px&#8221; text_line_height=&#8221;2em&#8221; link_font=&#8221;||||||||&#8221; ul_font=&#8221;||||||||&#8221; ol_font=&#8221;||||||||&#8221; quote_font=&#8221;||||||||&#8221; header_font=&#8221;||||||||&#8221; header_2_font_size=&#8221;50px&#8221; header_2_line_height=&#8221;1.5em&#8221; header_5_font=&#8221;Oswald|||on|||||&#8221; header_5_text_color=&#8221;rgba(255,255,255,0.4)&#8221; header_5_font_size=&#8221;20px&#8221; header_5_letter_spacing=&#8221;3px&#8221; header_5_line_height=&#8221;1.7em&#8221; text_orientation=&#8221;center&#8221; background_layout=&#8221;dark&#8221; max_width=&#8221;800px&#8221; module_alignment=&#8221;center&#8221; custom_padding=&#8221;|||&#8221; text_line_height_last_edited=&#8221;off|desktop&#8221; header_2_font_size_tablet=&#8221;&#8221; header_2_font_size_phone=&#8221;36px&#8221; header_2_font_size_last_edited=&#8221;on|desktop&#8221;]<\/p>\n<h2>Ma tutto questo noi crediamo non gli impedisca di fare ci\u00f2 che vuole\u2026certo a modo suo e con i suoi tempi!<\/h2>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; next_background_color=&#8221;#232220&#8243; _builder_version=&#8221;4.4.5&#8243; background_color=&#8221;#f7f7f7&#8243; bottom_divider_style=&#8221;ramp&#8221;][et_pb_row column_structure=&#8221;1_3,1_3,1_3&#8243; disabled_on=&#8221;off|off|off&#8221; _builder_version=&#8221;4.4.6&#8243; custom_margin=&#8221;|auto|60px|auto||&#8221;][et_pb_column type=&#8221;1_3&#8243; _builder_version=&#8221;4.4.5&#8243;][et_pb_image src=&#8221;https:\/\/lemanidifilippo.org\/mcto\/wp-content\/uploads\/2020\/05\/MCTO-cos-e-3.jpg&#8221; title_text=&#8221;MCTO-cos-e-3&#8243; align_tablet=&#8221;center&#8221; align_phone=&#8221;&#8221; align_last_edited=&#8221;on|desktop&#8221; _builder_version=&#8221;4.4.6&#8243; border_radii=&#8221;on|8px|8px|8px|8px&#8221; box_shadow_style=&#8221;preset2&#8243; box_shadow_horizontal=&#8221;-80px&#8221; box_shadow_vertical=&#8221;42px&#8221; box_shadow_blur=&#8221;80px&#8221; locked=&#8221;off&#8221;][\/et_pb_image][\/et_pb_column][et_pb_column type=&#8221;1_3&#8243; _builder_version=&#8221;4.4.5&#8243;][et_pb_image src=&#8221;https:\/\/lemanidifilippo.org\/mcto\/wp-content\/uploads\/2020\/05\/MCTO-cos-e-1.jpg&#8221; title_text=&#8221;MCTO-cos-e-1&#8243; align_tablet=&#8221;center&#8221; align_phone=&#8221;&#8221; align_last_edited=&#8221;on|desktop&#8221; _builder_version=&#8221;4.4.6&#8243; border_radii=&#8221;on|8px|8px|8px|8px&#8221; box_shadow_style=&#8221;preset2&#8243; box_shadow_horizontal=&#8221;-80px&#8221; box_shadow_vertical=&#8221;42px&#8221; box_shadow_blur=&#8221;80px&#8221; locked=&#8221;off&#8221;][\/et_pb_image][\/et_pb_column][et_pb_column type=&#8221;1_3&#8243; _builder_version=&#8221;4.4.5&#8243;][et_pb_image src=&#8221;https:\/\/lemanidifilippo.org\/mcto\/wp-content\/uploads\/2020\/05\/MCTO-cos-e-2.jpg&#8221; title_text=&#8221;MCTO-cos-e-2&#8243; align_tablet=&#8221;center&#8221; align_phone=&#8221;&#8221; align_last_edited=&#8221;on|desktop&#8221; _builder_version=&#8221;4.4.6&#8243; border_radii=&#8221;on|8px|8px|8px|8px&#8221; box_shadow_style=&#8221;preset2&#8243; box_shadow_horizontal=&#8221;-80px&#8221; box_shadow_vertical=&#8221;42px&#8221; box_shadow_blur=&#8221;80px&#8221; locked=&#8221;off&#8221;][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;Services Section&#8221; _builder_version=&#8221;3.22&#8243; background_color=&#8221;#232220&#8243; custom_padding=&#8221;80px|0px|80px|0px|true|false&#8221; locked=&#8221;off&#8221;][et_pb_row _builder_version=&#8221;4.4.5&#8243;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.4.5&#8243;][et_pb_text _builder_version=&#8221;4.4.5&#8243; text_font_size=&#8221;18px&#8221; text_line_height=&#8221;2em&#8221; link_font=&#8221;||||||||&#8221; ul_font=&#8221;||||||||&#8221; ol_font=&#8221;||||||||&#8221; quote_font=&#8221;||||||||&#8221; header_font=&#8221;||||||||&#8221; header_2_text_color=&#8221;#f99d0b&#8221; header_2_font_size=&#8221;50px&#8221; header_2_line_height=&#8221;1.5em&#8221; header_5_font=&#8221;Oswald|||on|||||&#8221; header_5_font_size=&#8221;20px&#8221; header_5_letter_spacing=&#8221;3px&#8221; header_5_line_height=&#8221;1.7em&#8221; text_orientation=&#8221;center&#8221; background_layout=&#8221;dark&#8221; max_width=&#8221;800px&#8221; module_alignment=&#8221;center&#8221; custom_padding=&#8221;0px||1px|||&#8221; text_line_height_last_edited=&#8221;off|desktop&#8221; header_2_font_size_tablet=&#8221;&#8221; header_2_font_size_phone=&#8221;36px&#8221; header_2_font_size_last_edited=&#8221;on|desktop&#8221;]<\/p>\n<h5>HAI DUBBI, DOMANDE, VUOI SAPERNE DI PI\u00f9?<\/h5>\n<h2>COntattaci<\/h2>\n<p>Vogliamo esserti vicini e aiutarti in questo percorso, o magari tu puoi aiutarci nel nostro.<br \/>\nCompila il form qua sotto<br \/>\n[\/et_pb_text][et_pb_text _builder_version=&#8221;4.4.5&#8243; text_text_color=&#8221;#ffffff&#8221; header_2_font=&#8221;SVN Marujo||||||||&#8221; text_orientation=&#8221;center&#8221; width=&#8221;60%&#8221; width_tablet=&#8221;80%&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|phone&#8221; module_alignment=&#8221;center&#8221;]\n                <div class='gf_browser_gecko gform_wrapper' id='gform_wrapper_1' ><div id='gf_1' class='gform_anchor' tabindex='-1'><\/div><form method='post' enctype='multipart\/form-data' target='gform_ajax_frame_1' id='gform_1'  action='\/mcto\/wp-json\/wp\/v2\/pages\/176#gf_1'><input type=\"text\" name=\"W8bdo\" value=\"\" style=\"display: none !important;\" \/>\n                        <div class='gform_body'><ul id='gform_fields_1' class='gform_fields top_label form_sublabel_below description_below'><li id='field_1_1'  class='gfield gfield_contains_required field_sublabel_below field_description_below gfield_visibility_visible' ><label class='gfield_label gfield_label_before_complex'  >Nome<span class='gfield_required'>*<\/span><\/label><div class='ginput_complex ginput_container no_prefix has_first_name no_middle_name has_last_name no_suffix gf_name_has_2 ginput_container_name' id='input_1_1'>\n                            \n                            <span id='input_1_1_3_container' class='name_first' >\n                                                    <input type='text' name='input_1.3' id='input_1_1_3' value='' aria-label='Nome' tabindex='50'  aria-required=\"true\" aria-invalid=\"false\" \/>\n                                                    <label for='input_1_1_3' >Nome<\/label>\n                                                <\/span>\n                            \n                            <span id='input_1_1_6_container' class='name_last' >\n                                                    <input type='text' name='input_1.6' id='input_1_1_6' value='' aria-label='Cognome' tabindex='52'  aria-required=\"true\" aria-invalid=\"false\" \/>\n                                                    <label for='input_1_1_6' >Cognome<\/label>\n                                                <\/span>\n                            \n                        <\/div><\/li><li id='field_1_3'  class='gfield gf_left_half gfield_contains_required field_sublabel_below field_description_below gfield_visibility_visible' ><label class='gfield_label' for='input_1_3' >Email<span class='gfield_required'>*<\/span><\/label><div class='ginput_container ginput_container_email'>\n                            <input name='input_3' id='input_1_3' type='text' value='' class='medium' tabindex='54'   aria-required=\"true\" aria-invalid=\"false\" \/>\n                        <\/div><\/li><li id='field_1_4'  class='gfield gf_right_half field_sublabel_below field_description_below 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